This session will explore the legal, ethical and practical challenges of consent in data sharing and integration. This session will outline the role of consent within major federal laws governing the sharing of administrative data, including individually identifiable information; and examine important ethical implications of consent, particularly in cases when the law is silent or unclear. Finally, this presentation will lift up the foundational role of strong governance and consent frameworks in ensuring ethical data use and offer technical alternatives to consent that may be appropriate for certain data uses.
MAY 15, 2025
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Workshop Resource
05/15/25
External Legal Supports, Privacy
Data, Family Education Rights and Privacy Act, HIPPA, MOU, Research, System
